tag:blogger.com,1999:blog-1891776177169967520.post3431318598834849180..comments2023-03-26T01:43:00.773-07:00Comments on The Time of our Lives: Microtia... Gabriella's medical updateTeresahttp://www.blogger.com/profile/08339299951308165608noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1891776177169967520.post-54134237643135417732011-03-09T09:07:00.184-08:002011-03-09T09:07:00.184-08:00Hi I just found your blog when searching for Micro...Hi I just found your blog when searching for Microtia and sunglasses. Was your optomitrist able to come up with anything? We've tried the headband ones but they slide off too and my daughter wears a BAHA hearing aid on a headband and so that gets in the way too.<br /><br />I think it's awesome you adopted a child with microtia. It's been on our hearts to adopt our 3rd child and for it to be a child affected with a facial difference similar to our daughters. <br /><br />Anyway I wanted to let you know that there are several online support groups on facebook and yahoo groups (just search for microtia) with a wealth of information. You mentioned the rib graft technique and I just want to let you know that there are several other options that may work better for her that are less evasive and don't have to wait until she's 6 to start. The californiaearinstitute.com has a lot of info and a majority of families affect go through them (they're worldwide)<br /><br />Anyway Hi! Feel free to follow my blog too. If you have any questions let me know.<br /><br />KristinKristinhttps://www.blogger.com/profile/04444830434600661406noreply@blogger.comtag:blogger.com,1999:blog-1891776177169967520.post-23713203945693496342011-01-02T17:05:39.647-08:002011-01-02T17:05:39.647-08:00Thanks for sharing your story. My daughter has he...Thanks for sharing your story. My daughter has hemifacial microsomia, part of which means she has grade 3 microtia. I was wondering if you were able to find glasses that work. We have tried many types with bans etc and none work. My daughter is 18months old and loves glasses too!<br />Thanks<br />AngelaAnonymoushttps://www.blogger.com/profile/08308215542858366133noreply@blogger.comtag:blogger.com,1999:blog-1891776177169967520.post-1475142209806845192010-04-22T15:22:14.283-07:002010-04-22T15:22:14.283-07:00Hello Teresa,
I am so excited to see your girl so...Hello Teresa,<br /><br />I am so excited to see your girl so happy and full of life! What an amazing girl God had chosen for your family. We miss Gabriella giggles, dance and such and so blessed that now she has her own forever family.Lillyhttps://www.blogger.com/profile/12904223933087058189noreply@blogger.comtag:blogger.com,1999:blog-1891776177169967520.post-33116755920102471472010-04-20T21:24:05.315-07:002010-04-20T21:24:05.315-07:00I know so many with this condition and it really i...I know so many with this condition and it really is such a non-issue with many. The girl at the same orphanage as Reagan had this. They do have sunglasses for kids that have bands to stay on the head - geared for a bit younger but our kids used them from time to time.<br />not as cute as most but work well.<br />LavonneTheDideonGanghttps://www.blogger.com/profile/16248178083291592311noreply@blogger.comtag:blogger.com,1999:blog-1891776177169967520.post-83640086536291279772010-04-20T11:46:07.312-07:002010-04-20T11:46:07.312-07:00awwww. God bless. You are now the 3rd family I...awwww. God bless. You are now the 3rd family I've met who have adopted a child with this SN. I'ld never heard of it before, either!! I wish you and her all the best :o)Joannehttps://www.blogger.com/profile/06152476563966793694noreply@blogger.com